Guys and gals, thank you for your support and prayers. Lyme is serious bussiness, but is no longer "bad news" as long as it is discovered and treated early.
"Chronic" Lyme desease which apparently is what I have (that which goes undiscovered and untreated until advanced symtoms start) is controvertial because the current standards for diagnosis and treatment favor the health insurance industry by implying that chronic Lyme desease doesn't exist and no treatment is necesary (some of the people in the panel that created those standards, the Infectious Desease Society of America, had finantial "conflicts of interests" as discovered by the Attoney General of CT, who started an Anti-Trust investigation against the IDSA. The case was settled earlier this month and a new panel will review the current standards).
Originally posted by akennedy73:
lyme's disease research needs more funding IMO - I believe it's far more prevalent than is commonly recognized - from wiki:
You are right. When I found out that I could have Lyme I started to do some research on it (after all, I do research for a living) and it turns out that there is a Bill that has been sitting in congress for some time now trying to create a Tick-Born Diseases Advisory Comittee within the Department of Health and Human Services to coordinate research and stasitical/clinical information from all Federal Health agencies and all anecdotal data available form clinical practicioners in the area of Lyme and related diseases. The Bill would also specifically consider chronic Lyme and assign a budget for research and the development of more accurate diagnostic tests (according to the leading clinical practicioners, the ELISA test gives false negatives 50% of the time).
From what I can gatther form my research, the health insurance industry opposes the Bill. The current standard of treatment for Lyme is 2 to 4 weeks of antibiotics at approximately $500 a month. New standards that recognize Chronic Lyme could change treatment to a minimum of 1 month to a maximum of 2 years of antibiotics (different antibiotics been switched and rotated regularly and still at approx. $500 a month) depending on the stage of the desease.
Jeepnut22, hope the test come back negative, and I'm assuming they tested the tick. If they tested your wife, the most probable test done is the ELISA test. If that's the case, you may get a false negative. Request a Western Blot test which is 95% accurate, but you may have to pay for it out of pocket. According to the current diagnostic standards, the Western Blot test is only indicated to verify a possitive or inconclusive ELISA test. That means that if the ELISA come back negative, your insurance doesn't have to pay for the Western Blot test